erythromelalgia

[03271115]

8 years ago I was diagnosed with ET. I've been able to manage my platelet count with baby aspirin. My only complaint is my skin. The rashes are at night and sting, itch and bleed. Only ice packs work to stop the suffering. I've been complain to my and other specialist they say I have eczema and just shoved me aside. Basically today I found out there is a rash associated with ET, erythromelalgia know about this rare condition associated with MP? I have really lost faith in my doctors.

[EssThro]

I've been told that I have erythromelalgia due to my ET/Prefibrotic MF. My symptoms are skin sensitivity, redness, and small nodules in my fingers. It is brought on by cooler temperatures and made worse by gripping paddles, etc. The pain seems to be worse when my fingers get really warm. I hope it helps.

Good luck to you!