hi everyone…..a question with Ruxolitinib

[Yvette49]

I’ve been on Ruxolitinib now for just 4 weeks, I’ve been getting nose bleeds on and off, but lately developed a cough, not phlegm, just a heavy dry cough. Has anyone else experience this please.

many thanks 🙂

[Mazcd Partner MPNVoice]

hi Yvette, so sorry to hear you are experiencing these symptoms. I have looked in our information book and listed under the common side effects: you may experience nose bleeds. The advice is to contact your hospital.

Best wishes, Maz

[Yvette49 in reply to Mazcd]

thanks Mazcd, I am seeing my Oncologist next weds, so will run it all pass her. I really do t mind going back on Interferon peg. ( my husband does it for me 🥴 ) I was ok on it…getting worried about putting more weight on with RUX, as I have been putting weight on, because I have breathlessness ( it’s being investigated this last 2 years, and nothing is showing up why, ( lung function was not normal, and echocardiogram showed fast heart beat ( I’m already on Sotalol for A.F. ) sorry, think I am rambling here….i feel like my body is falling apart, but maybe 75 I should expect it.

Sorry for rambling 🤗

[ainslie]

definitely contact your Haem/doc sooner than later

[Cja1956]

The Ruxo might be making you more anemic. That’s probably why you’re getting the nose bleeds. I would definitely call your doctor as soon as possible.

[Sherpa8]

yes I to have infrequent nosebleeds. I am on Rux. To be honest I think the nosebleeds are due to the daily 75mg Aspirin more than RUX. As I see bruising usually on my hand at the same time as the nosebleeds start. Best to run past your medical team? To be on the safe side.

[Yvette49 in reply to Sherpa8]

Thank you sherpa8 and everyone for their replies, if I get worse before my appointment next weds, I’ll call them 👍