Thanks for all the encouraging words since my recent diagnosis. I am wondering if anyone knows the purpose of taking drugs to lower platelets. I am wondering if you want them lowered to reduce the co-morbidity of things such as Tia's, stroke, heart attacks, or DVT's. Or, does lowering platelets have an effect on the long term prognosis of the disease, that is does it slow the progression of the disease and does it long term lower the chances of it turning or morphing into something else such as MF, PV or leukemia. My platelets have been between 450-550, now in the 475 range, I hesitate to start taking HU until I have to, I have no symptoms that I am aware of and my hematologist says that if they go over 500 again that I should take the HU.
Hate to start taking a drug that will have to take for life and has side effects until I have to do it. Anyone have bad side effects from HU such as hair loss, nausea, diarrhea, tiredness?
Thank you in advance for any advice you can share.