pre workout supplements

[kamiilos]

Hi, wonder if any of you use a pre workout supplements and if its safe to do for us ? I am not very experience at the science behind it, but some supplements help to carry more oxygen through our RBC, promoting its production which I guess its not suitable for us ?

Before and soon after I was diagnosed with PV I used to take Microhydrin that helped me boost exercise input and recovery, but I was brain foggy due to clots and I had slightly impaired vision.

I stopped this supplement and instantly felt way clearer and my vision improved which tells me Microhydrin was responsible.

Now I wonder if its safe to take a different pre workout supplement. I am thinking of H500 that contains H-500 Proprietary Blend (Potassium citrate, Magnesium citrate, Potassium ascorbate, Silicon dioxide, Sodium Borate). It apparently works on cellular level combating free radicals, It lowers lactic acid levels and facilitates its rapid removal from muscles, promoting post-workout recovery.

I tried it several times, I did not notice a difference in overall mood, other than I could run longer and train more intensively.

Just wonder if such supplements are not prohibited for us that samely we are not promoting the disease progression.

I did ask Naturopath and they didn't seem to know / say much on its impact. Other than prescribing vitamins and minerals they thought are good to maintain the disease.

Perhaps I should dig deeper and make an appointment with MPN specialist or other Naturopath regarding this...

Before I was diagnosed I trained on athletic level. Even though I train much less now and not compete, it still brings me loads of joy and stress relieve.

[hunter5582]

We do need to be careful when managing a MPN. Anything that is biologically active enough to help you can also hurt you and interact with the things we take. I have found that many traditionally trained doctors are not familiar with complementary health interventions and supplements. They are understandably reluctant to recommend something that is outside of the scope of their practice. That is why I consult with an Integrative/Functional medicine doctor about the use of supplements.

Suggest that your question would be best reviewed with a doctor who is familiar with the supplements you wish to consider, how the supplements may impact the PV, and how the supplements may interact with the medications you take. It is often either an Integrative or Functional medicine doctor (some practice both) who is best equipped to answer your questions. You would also want to work with your MPN care team about anything you plan to try. I do not know of any Integrative medicine doctors in Australia. This link can help to locate a Functional Medicine doctor. ifm.org/find-a-practitioner/

Please do let us know what you learn and how you get on.

[C2Cnext]

Beta Alanine is used by many of us in this community for its ability to help reduce itching. However it is most widely used by the gym bunnies of this world to improve muscle endurance, and I had to venture to a supplement shop in the back of a weightlifting gym to buy it 🤦I have no opinion on whether it contributes to improved muscle endurance as I don't stress my muscles enough to know, but I did check with my pharmacist whether it was OK to take alongside Peg interferon and was advised it was ok. I also sought out peer reviewed studies on its long term effect. Couldn't find much beyond a study of marines (?) and one of elite Basketballers who didn't report any problems (as I recall) and who did report greater endurance. The dosages for sports is higher than I take.

In me, it does produce tingling in my face after I take it. The tingles are a commonly reported side effect.

Might be worth researching?

[kamiilos in reply to C2Cnext]

Very interesting with Beta Alanine, yes I will research deeper about that thank you C2Cnext.All supplements I use to take and take now are based on herbs and vegetables. However I did struggle with itching a lot after starting Peg journey. I was told about new diet to substitute carbohydrates to fats. Since I am on low carb high fat diet itching became much more manageable. All the best 👋