I have appointment At university Hospital London in October. It ties in nicely with one at Guys . Booked transport and place to stay.
I got another appointment a couple of weeks ago for March next year (phone appointment).
Thought this odd . Luckily I decided to confirm today this was as well as one in October….. (by email).
to my surprise October cancelled and supposedly a letter had been sent….
I rang . Had a chat to secretary. Telling her I have booked transport, expressing disappointment. After a bit she said one appointment available that is 2 hours earlier.
We have to be pro active every step of the way don’t we…….!!!!!
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Mostew
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glad you asked , we are so fortunate in Uk to still have a few NHS clinics.
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I often think as an ET patient under the care of a haematology team that I am somehow missing out on any attempt at a holistic approach to my condition both physically and mentally. I have mentioned this at my clinic appointments and the doctor agreed the situation is not perfect. So may I ask how we go about receiving this sort of input, we do after all have a cancer, but it seems the cancer we have is not seen in the same light as a 'real cancer'. If we are under the care of a haematologist is it possible that we can also be referred to oncology to enable us to benefit from the holistic care which they provide? I feel quite strongly about this situation but do not want to make a big fuss so any information would be helpful. Many thanks.
It’s always worth talking to either you GP or haematologist . Explain why you wish for a referral ,my Gp was happy to write a letter .feel fortunate to have Guys AND integrative team as part of my care .
Things often don’t get offered … so as always we need to speak up…..
I did bring this up with my haem doc stating that i felt disappointed that there was no holistic approach, he agreed but did nothing about it. I am now under the wing of Guys after emailing prof Harrison myself, a joint care arrangement which I am happy with, I am due to change from hydroxy to pegasys next week...feeling quite excited!
I have been a patient at the MPN service at UCH for a couple of years now. This is the first I have heard of the Integrated Cancer Care service at UCH. It will be very interesting to hear your feedback Mostew if you wish to share it.
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