University Hospital NHS Integrated Cancer Care

[Mostew]

I’ve got a phone appointment with Cancer department a next month . Really pleased as I can discuss taking HU with some supplements

And have the approved / co ordination with, my go and usual consultant . I requested a referral from my GP . To my surprise he agreed !! HU

[MPort]

Well done and good luck. Has the Cancer Department got a special ialist haematology section? A long time ago, abroad, the haematologist I saw was in the cancer department and he had little experience of MPNS. We liased with Guys team and it all worked out. Have your questions ready.

[Mostew in reply to MPort]

Thank you .

I’m more interested in their advice on what I can take in addition to conventional meds, than specialist haematology . It’s the step towards me getting my head round knowing I can’t get platelets down naturally .

I’ve tried for 1and a half years . Hard to accept as I feel fine ........

X

[JediReject]

Hi Mostew, , as a well known team leader of some repute used to say "I love it when a plan comes together" . . Pleased you feel you're making progress now you need the services of the A Team to set you on the right track. Good Luck with it.

Chris

[Mostew in reply to JediReject]

Thanks Chris , your support is so appreciated . Right track and ACCEPTANCE of how things are not how I’d like them to be !!!!!

Hope u r doing ok

Carolyn

[JediReject in reply to Mostew]

I'm ticking along reasonably ok thanks Carolyn . Like most of us I have my ups downs and a degree of discomfort which means I cant climb trees any more but it doesn't stop me hugging them. What I'm trying to say is as a once very active guy I've just got to recognise and ACCEPT my limitations and try not to get too frustrated when I fall short of my expectations / goals. Take care