MPN specialist

[Bear111]

Good afternoon, I am trying to find an MPN specialist local to where I am, I am struggling a little as they seem to be fairly few and far between, I live in Essex, UK. if anyone has any names please would you let me know, many thanks.

[hunter5582]

Here is a list of patient-recommended MPN Specialists. mpnforum.com/list-hem./

[Bear111 in reply to hunter5582]

Thank you Hunter again, you are so knowledgeable and helpful, many thanks for taking the time to reply.

[Heather270240 in reply to Bear111]

Professor Clare Harrison is I believe your closet. I go to her from Kent. I see here personally every 3 months and a phone call from one off her team every six weeks. I was referred by my GP.

[Bear111 in reply to Heather270240]

Hi Heather, thank you so much, I really appreciate your help. I will speak with my G.P, thanks again.

[ciye in reply to Heather270240]

My haemo has agreed to refer me to her, gps said as it was out of area for them to refer. I will have to wait for bmb and spleen scan as she will ask for those. So may have to wait longer than I would like.

[Bear111 in reply to Heather270240]

Hi Heather, I have emailed Professor Harrison, she has replied and is willing to see me, just hope my G.P will refer me, thank you again for your help I am very grateful.

[Dottiedot in reply to Bear111]

Morning that's really good news did you email Prof Harrisons secretary? I'm in Essex too and still waiting for haematologist to refer me x

[Bear111 in reply to Dottiedot]

Good morning, I was given her name by one of the lovely users on this forum, I googled her and rang the number on her bio, the professor wasn’t there, I emailed the gentleman I spoke with and he forwarded it to Professor Harrison who kindly responded, I hope this is of help.

[gilded in reply to Bear111]

Hello Bear 111. Having lost confidence in my NHS GP, I consulted a private GP who was on the ball and quickly referred me privately to a consultant Haematologist in London. It was a price worth paying (but nowhere as unaffordable as one would imagine). The Haematologist correctly diagnosed my condition and advised that future treatment should be by the NHS given that the ongoing condition would be horrendously expensive to fund privately. Since then the same Consultant has treated me at an NHS hospital with NHS prescriptions.

[Bear111 in reply to gilded]

Thank you for replying to me, it is definitely something to think about, I will look into it further, thank you very much .

[Threelions]

HiShe’s been mentioned already. I’m in Essex & was referred to Prof Claire Harrison at Guys.

She’s an angel 😇

[Bear111 in reply to Threelions]

Thank you, I have emailed Professor Harrison, she is willing to see me, I hope my G.P will refer me fingers crossed 🤞