Video of the MPN Voice ‘virtual’ forum focussing on PV, held on Thu 27 Jul 2023

[Mazcd]

This ‘virtual’ forum focussed on Polycythaemia Vera (PV) and features talks from: Prof Claire Harrison, Guy’s & St Thomas’ NHS FT; Dr Anna Godfrey, Cambridge University Hospitals NHS FT; Prof Mary Frances McMullin, Queen’s University Belfast and Dr Rebecca Frewin, Gloucestershire Hospitals NHS FT, and a patient speaker, Charlie.

Programme:

Welcome and introduction to MPN Voice – Prof Claire Harrison

How we make a diagnosis and the role of genomics – Dr Anna Godfrey

Conventional treatment for PV – Dr Rebecca Frewin

A forward look to future therapies – Prof Mary Frances McMullin

A conversation with a patient – Dr Rebecca Frewin and Charlie

Panel discussion Q&A session – speaker panel

Close of forum – Prof Claire Harrison

INFORMATION CONTAINED IN THIS VIDEO WAS CORRECT AS OF 27 JULY 2023

We would like to thank Prof Harrison, Dr Godfrey, Dr Frewin, Prof McMullin and Charlie for their support, we are very grateful to them for giving their time to support the MPN community in this way. And our thanks also to everyone in the Guy’s & St Thomas’ Commercial Service Directorate team for all their help and assistance in producing this forum.

We hope that you enjoy watching the forum video, if you would like to send us any comments/feedback please email [e-mail]

Donate to MPN Voice – MPN Voice would not exist without fundraising, donations and grants, we are kindly asking everyone to be as generous as they can to help us support our ongoing projects, including the webinars and virtual forums, supporting the MPN patient and healthcare communities. We would be very grateful for your support with a donation to MPN Voice which you can make via the MPN Voice JustGiving page, thank you. justgiving.com/mpnvoice

youtu.be/sNAnFBOKG-8(Not working as expected?)

[Yanks7]

Thank you for posting. I was able to participate but had to leave when the patient interview started. I've been looking forward to this post so I could view the rest of the presentation. This was my first since my PV diagnosis November 2022 and I thought it was outstanding in every way. I very much appreciate that there are such great scientists and doctors investing their time and energy into making life with PV easier and better for us.

[Mazcd Partner MPNVoice in reply to Yanks7]

thank you Yanks7 for this great feedback. Maz

[Lilliegarden]

thanks for posting.

I joined this online forum too, also my first since diagnosis earlier in 2022.

Found it incredibly useful & very grateful for all the work these professionals are doing & sharing with us

[Mazcd Partner MPNVoice in reply to Lilliegarden]

You are welcome Lilliegarden, glad you found it useful, thanks for your feedback. Maz