good news for once: in may they increased my... - MPN Voice

MPN Voice

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good news for once

Cat1001954 profile image
15 Replies

in may they increased my hydroxy to 10 per week as my counts were raised on weds my results were normal wbc and 414 platelets really please have to stay on 10 per week as they are working

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Cat1001954
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15 Replies
Mostew profile image
Mostew

Good to hear. .

Cat1001954 profile image
Cat1001954 in reply to Mostew

thank you

mhos61 profile image
mhos61

Delighted for you!

Cat1001954 profile image
Cat1001954 in reply to mhos61

thank you so much

lizzziep profile image
lizzziep

That’s great! 😁

Cat1001954 profile image
Cat1001954

thank you so much

Yanks7 profile image
Yanks7

Congratulations!

Cat1001954 profile image
Cat1001954 in reply to Yanks7

thank you so much

Shanders profile image
Shanders

That’s great to hear. I started on HU 4 months ago and has taken lots of gradual adjustments to get below 400. 16 a week suddenly started working when previously 14 was doing nothing…..funny how it just seems to kick in

Cat1001954 profile image
Cat1001954 in reply to Shanders

thank you. Yes it’s a year next month I was diagnosed with triple negative ET and the extra chemo drugs a week has lowered my counts and first time time normal wbc

saltmarsh profile image
saltmarsh

Excellent news. At the beginning of the year I was on 3/day which my body couldn't tolerate. Dropped to 2/day and now 1/day with 2 M,W,F. Amazingly, my numbers dropped. It is interesting how this drug works for some. Best wishes and good luck

Cat1001954 profile image
Cat1001954

thank you so much

russkatt profile image
russkatt

Are you referring to 10 as capsules? That would be 5000mgs weekly?

Cat1001954 profile image
Cat1001954 in reply to russkatt

1 on sat 1 sun 2 mon 1 Tues 2weds 1 Thurs 2 friday

Cat1001954 profile image
Cat1001954

10 per week

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