hydrea shortage in Ireland

[Munster5]

Hi - just wondering if any Irish patients are having problems sourcing hydrea at the moment. There seems to be a shortage of it.

[Roxy1959]

hi I’m in Northern Ireland and haven’t had a problem so far due to get a prescription within the next 2 weeks . Hope you get sorted 🤞🏻

[Munster5 in reply to Roxy1959]

Tks fr that !

[Alfie1234]

Hi Munster5No hydrea available in my Dublin pharmacy. They expect delivery by nxt Friday. So I will be 6 days without hydrea.

[Munster5 in reply to Alfie1234]

I have run out too - rang about 20 pharmacies yesterday in Dublin to no Avail. Let me know if ur pharmacy manages to get it in and I would drive over ! Tks fr the update!

[Alfie1234 in reply to Munster5]

I have just secured a hydrea prescription from a different pharmacy in Dublin. Boylans Claddagh Green D 10. It was my first to call so was lucky.

[Munster5 in reply to Alfie1234]

I will try here - Tks so much!

[IrishSarah]

Munster5 if you haven’t already tried Long Mile Pharmacy in Drimnagh, Dublin 12 it could be worth giving them a call. [phone]

Mohammed is a fabulous pharmacist, really kind and helpful, sourced innohep for me when it was like hens teeth.

Best of luck with the search🤞🏻

[Munster5 in reply to IrishSarah]

Tks fr that!

[Kate2008]

Worrying there’s a shortage of Hydrea!

Hi I’m Jenny, I live in Kildare and diagnosed with ET nearly 2 years ago. Just wondering if any of the Irish on this would ever like to meet up for tea and a chat? Thanks Jenny

[Hydranga18 in reply to Kate2008]

Just to say Hello… and interested if you see an MPN Specialist .. or just a regular Haematologist.. I hope you are doing ok on whstever treatment you are on. I have ET since 2019 on Hydrea .

[Kate2008 in reply to Hydranga18]

Hi Kilmichael

I attend Tallaght hospital and see a Haematologist I’ve never seen an MPN Specialist. I too are on Hydrea 1000mg for 5 days and then 1500mg on 2 days. I also take Aspirin and Lansoprazole. Hope you are doing well on the Hydrea. Thanks Jenny

[Munster5 in reply to Kate2008]

an Irish meet-up would be a great idea!!

[Kate2008 in reply to Munster5]

It would, I’ve never meet anyone who has ET it would be good to share stories.

Thanks for the reply, Jenny

[Hydranga18]

I haven’t had any problem getting Hydrea .. I live South . Hope you get sorted

[Munster5 in reply to Hydranga18]

Tks a mill

[Audo_tt_boy]

just spotted this one hpra website on the shortage ….. look like this shortage will be around for another 2 months at least …

Screenshot

[Munster5 in reply to Audo_tt_boy]

it doesn’t look very promising! I managed to get a months supply but after that will be stuck ! Any pharmacy I rang said it’s not even available to order 😢

[Audo_tt_boy]

no it’s not very good, I am not on hydrea anymore I am on Pegasys, but they have gotten really strick on when they allow me to order it … like I was told I was ordering 5 days early last month … it must be to protect supply of all high tech drugs ….

[Munster5 in reply to Audo_tt_boy]

on another note would you recommend moving to Pegasys? I didn’t think it was licensed in Ireland but see a lot of Americans saying it’s much better than hydrea and slows progession of the disease.

[Audo_tt_boy in reply to Munster5]

I see the hemo team in Beaumount Dublin btw

[Munster5 in reply to Audo_tt_boy]

I see the Haemo team in Vincent’s fr PV - I have tolerated the hydrea well so will have to push fr a charge. Is it very expensive in Ireland?

[Audo_tt_boy in reply to Munster5]

ah I take it for high risk ET after clots and heart attack . While it might be expensive it’s covered under the HSE drug payment scheme so won’t cost more than80 euro a month.

[Audo_tt_boy]

yes I would recommend moving to peg alright . I was on 3 -4 mg of hydrea for 9 months at the start in 2017 and the side effects were just too much to handle … your hemo can prescribe peg as it’s recognised as a off label solution . I am on it 5 years now 135mg ever 10 days or so .. need to be monitored closely but over all must better than hydrea for symptom burden and side effects in my case anyway

[mellieevans]

Hi there! I do not live in Ireland but live in Spain and have the same problem here. I could be without Hydrea for up to 10 days. Waiting to hear back from my GP who has to order via a special procedure. Good luck.