Hi guys Haven't been om a while has had quite a few appointments and still git few on the way ,I mentioned symptoms to my haematologist in August she saw me face to face explain to me now am in the medium risk group has age (40-60 years old ) and has platelets are rising up and not going down not alot at this time being haematologist refferd me to TIA stroke team talk with them over then phone .
Had a brain scan (alright), neck vessels ultrasound scan (alright ) different bloods test came back low blood sugers levels said not worry could be just a one off referred me to diabetes team don't think it is but gave me a machine to test 2-3 times a week went up today to have bloods done to check on hormones levels got appointment with them again on 13th which I think going be fine , got ECG have on Friday 24 hours then a spinal mri scan Tuesday then TIA appointment over phone 30th which think will be okies then haematologist what's see me bk just after on the 3rd of December to see where we at has August platelets count just under 900 if goes to 1,000 and my symptoms still same and depends on out come on appointment aswell then going put me on interferon alpha which gave me a book on this to read on , am still on 2 75mg aspirin tell see what where we at when go back on 3rd December.
Thank-you guys
Written by
Jody00
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Sounds like you are getting a very thorough evaluation. It is doubtless a relief to see all the negative results.
If you do decide to start on one of the PEGylated Interferons (most use Pegasys) then there will be a bit to learn. I was on PEG for a while before I switched to Besremi. It was very effective and easy to tolerate. I have only had very minor side effects (itching) that are easily managed (Claritin). The injections are very easy to do and essentially painless. I can barely feel them when I self-inject.
When reading about Pegasys, bear in mind that while in common use for ET, its use for ET is off-label. The typical starting dose is 45mcg/weekly compared to 180mcg/weekly for hepatitis. The side effects you will read about are dose-dependant.
Thank-you for update on information hunter I have a new haematologist now has mine is off sick for quite a while when a meet him in October he's ask me to report back my symptoms on weekly basis has he said he only start me on treatment depending on TIA stroke appointment on the 30th November depending on what there say and depending on symptoms if there are getting worse or stable and platelets count which said I will see him around 3rd of December to see how we go but thank-you guys Xx
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Update on my 12 wk check up 
Checking in
1st Heamotology appointment 
Worrying appointment today 
Haematology Appointment Update 
