Breaks PV down Barney style!: youtube.com/watch?v... - MPN Voice

MPN Voice

10,722 members14,843 posts

Breaks PV down Barney style!

Barbiebreath profile image
9 Replies

youtube.com/watch?v=pWGRT17...

I know most here know all of this but maybe some don’t or some new people may find this helpful.

Written by
Barbiebreath profile image
Barbiebreath
To view profiles and participate in discussions please or .
9 Replies
Buggerbear profile image
Buggerbear

Thank you for sharing Barbiebreath!! That video is so easy to understand!! Now to check out some on ET!!

LittleLuna profile image
LittleLuna

This is great. Love how PV is explained. So makes more sense.

Sewingtime profile image
Sewingtime

Thanks for sharing!

EPguy profile image
EPguy

Some notable items:

-PV causes excess red blood cells from marrow malfunction( we are familiar) EPO is often too low.

-2ndary polycy is from excess EPO production, so EPO is too high (I did not know that)

-Some athletes intentionally add RBCs to create temporary polycythemia with deliberately increased HCT.

-Thick blood from PV causes high BP. ( I had crazy BP at Dx even with HCT only at 50)

hunter5582 profile image
hunter5582

Love the Ninja Nerd Science series!

Maisie10 profile image
Maisie10

Thank you for sharing. Brilliant. Take care

Cityreach profile image
Cityreach

Thankyou fur sharing

chelsea1 profile image
chelsea1

Hi, Many, many thanks for sharing this! It just helps to make more sense of what is going on with us. I will be showing this to my partner who sometimes struggles to understand my condition - actually, most people do not understand it!

Meatloaf9 profile image
Meatloaf9

Thanks for sharing, best to you.

Not what you're looking for?

You may also like...

PV diagnosis

Hello All, I was diagnosed with PV 3 weeks ago my hematocrit was 59. After 3 phlebotomies my number...

PV Question

Hello all I have PV for now my treatment has just been Phlebotomy and aspirin. I am experiencing...

Pv or NOT PV ?

Hello Everybody. Sorry for my basic & bad english firstly. 5 years ago, I went to the doctor with a...

PV classification

Does anyone know when World Health Organisation classified PV as cancer - BUPA are still saying it...

PV

Hi this is my first post! I am 42 and was diagnosed with PV when I was 35. I think I probably had...