I am trying to sort an unusual but positive change in my PV. I am Jak2 + and was diagnosed 4 years ago. I am on Hydroxy 500 mg once a day for 5 days and 2 tabs Sat and Sun. My HCT wanted to stay around 46-47% so I asked the doc to increase my phlebotomy and lower the Hgb Level to 13.5. Data I had collected over the years showed that with a Hgb of 15 my HCT ran about 46-47%. He agreed to the change in phlebotomy to every two weeks and a level of 13.5.
Since this change I have only had 2 blood draws in the last 5 months; one draw at 16.2 and the next one at 13.7. Previously, I was needing a draw each time I went in and was typically at 16 -16.5 Hgb. Lately, I have been around 13.3 each time.
I have been at a loss to understand this positive dramatic downward shift. I like it, yesterday I went in for my phlebotomy and was at 13.3!! After considerable noodling on this and the lifestyle changes, the only thing I can figure out is that in January my GP started me on Jardiance for type 2 diabetes. Now several months later my Hgb levels are where they need to be and only once were they above 13.5 and I had a draw at 13.7. This is a huge change for me as before I was running about 16 all the time.
Has anyone else noticed a change using the Jardiance? I know these levels go in cycles, at least for me, but this is a lot lower than I would normally cycle over an entire year!
I am excited for my labs next week to confirm what I am seeing at the phlebo's!