Stopping Ruxolitinib

[Scaredy_cat]

I had ET which has progressed to MF and have been on 2x5mg ruxolitinib for about 8 months. I've had skin tingling from before I started on ruxolitinib but it has been getting more widespread. The gp has asked for a neurologist appointment but no idea when that will happen. Because rux can affect nerves the haemo is stopping the rux (gradually at first) to see if that affects the tingling. Ian rather anxious about stopping the rux because of the affect it might have but also about the tingling. Has anyone had similar problems?

[Otterfield]

I wish I could say something helpful but I was also going to write a post about coming off Ruxolitinib. I won't hijack your post with my issues but I wish you well and hope you get answers and help soon. Jennie