Bone Marrow Biopsy Experience

[MotoNomad]

Just heading home while writing this answer, this is my first bone marrow biopsy and it was quite eventful. The doctor couldn't get enough extract from the hip bone and she had to make an extract from the chest bone. I don't know whether its the anesthesia or my pain tolerance, so far it feels like a bruise on both the areas. Nothing as scary as described but again it's my personal opinion. I'm able to walk and take a metro back home, wife insisted to get myself a cab but it's a nice sunny day and have preferred to come via metro. Wish you a good luck, let me know if any questions.

P.S - I'm 33 year old who has high plaetelet count and have recently tested positive for Jak2 mutation (25%).

[hunter5582]

Glad to hear things went OK, though sorry to hear it took two tries to get the marrow sample. It is great that you could take a nice walk on a sunny day afterwards. Please do let us know what you learn from the BMB.

[MotoNomad in reply to hunter5582]

Thanks dear, it's my first post. Had to gather lot of courage to accept that I have MPN. I understood it's important to be part of the support group where people can relate and share similar experiences. Thank you so much for your kind gesture.

[Mazcd Partner MPNVoice]

hello MotoNomad, very pleased that it all went ok for you, it can be very daunting when you are newly diagnosed with a MPN, there is such a lot to understand, we have a lot of very useful information on our website which will help you mpnvoice.org.uk

We are all here for you. Best wishes, Maz

[MotoNomad in reply to Mazcd]

Thanks Maz, appreciate it. I'm in transition between Paris to London, was very worried to know about my MPN at this stage of life & career but I'm hopeful that the change is gonna open up good things and London will help me to heal myself emotionally and physically. I will definitely keep in touch and seek more information in coming days.

[Mostew]

Thank you for sharing your experience. M Nomad

Not easy to accept having MPN ,especially so young .

Glad you have found your way to this forum ,

Lots of helpfull info and support from people who understand .

[MotoNomad in reply to Mostew]

Thanks Mostew. True, it is not easy to know things and live with them. It requires a lot of mental strength and support. Glad I could found this space.

[Meatloaf9]

Hi Moto,Glad to hear that your BMB went fairly well. Being able to walk home with the help of the metro is pretty darn good for just having had a BMB. Hoping the results of the BMB go as well as the procedure. Keep up the faith, you will most likely live a very long and rewarding life. Please let us know how the results go. Best to you always.

[MotoNomad in reply to Meatloaf9]

Thank you for your kind words. Knowing about MPN two weeks ago, I did not share with my family who lives abroad and do not want them to panic or deal with lot of stress especially my mom. I'm feeling lucky and blessed to read positive comments and would fight this out with all your support.

[Cja1956]

Thanks for sharing your story. It’s always scary when you first find out you have a mpn. You will find a lot of support here. Sending good wishes that you get good results from your BMB.

[MotoNomad in reply to Cja1956]

Thank you for your kind words Cja. I hope it will be good results from BMB, very anxious though. Good luck to you as well.

[Hidden]

G'day MotoNomad,

I've had 5 bone marrow biopsies, and I think 4 they had to go in twice :-}. I have Primary Myelofibrosis, which makes the bones very hard, making biopsies difficult. They eventually succeeded, always in the hip, though the aspirant was often dry and not very informative.

After effects were always as you describe. It's during the procedure that things can get interesting, but it mostly depends on your type and strength of anesthesia. I (by choice) had just a small amount of lidocaine at the biopsy site, and definitely had some brief white knuckle moments

Good luck!

-jim.

[MotoNomad in reply to Hidden]

Thank you for sharing your experience. Honestly, it kind of scares me now in terms of what I will get to hear from BMB. I hope I will survive this phase.

[Hidden]

It's scary not knowing. The BMB will help you and your doctor understand what's going on inside you – a good thing, regardless of what's found. But definitely hoping the news is good!