Hu battle

[heathermc]

Well after having a year of stability with my platelets they are going up.again from 380 to 470..but my HU has been reduced to 1 a day to allow my haemoglobin to rise which it has .I was on 4 angralide..they've now increased it to 6 a day..as this tablet seems to work better for me..but I increase the dose slowly starting at 5 for a few weeks ..

Still recovering from my anyeurism..but seems to be healing I hope

Any one else just get fed up of moaning at themselves

Stay safe Thanks

[hunter5582]

Venting is good. Vent away!

I would note that from 380 to 470 is within the normal variation in platelet levels. Platelets can vary by as much as 100K in a single day based on what is going on in your body (per my hematologist).

Also note that 600K is the cytoreduction target that some MPN Specialists use for ET since there is not evidence to support a linear relationship between thrombosis risk and platelets below 450K.

silvermpncenter.weill.corne...

Some people do find that platelets <400 correlates with other reduced symptoms. While it is not actually about the number of platelets, feeling better/symptom control is always a good thing.

Hope you get it sorted soon. And always vent when you feel the need. We are always here to listen.

[Bluetop]

It seems to be a big balancing act -I hope you get on an even keel again soon.