Hi everyone, I have just received an Email today from NHS informing me that I will be having delivered a PCR test to keep at home and use if I get Covid symptoms. They give instructions with phone numbers etc and the treatment can be administered right away if test is positive.
They say I’ve been selected because of a health condition ( will be the MPN) . I did read about this treatment some weeks ago, so it looks as if we are not the forgotten folk at last. Just wondering if my friends on here have been contacted too.
Best wishes to all for a Happy Christmas and good health and peaceful 2022. Kind regards Fran xx
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azaelea
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Hello… I tested positive on Friday…. Had a PCR which also come back positive… after an assessment over the phone this afternoon I’m now waiting for my anti viral meds to be delivered by my hospital. Initially I had a phone call from the nhs to say I had flagged up as testing positive because I’m under the extremely vulnerable category then a doctor rang me this afternoon to do the assessment. Very fast. X
Thank you… I’m at starting to feel a little chesty now. My meds have now been delivered so I have just started them. Quite a few capsules! 4 capsules twice a day for 5 days. X
I have PV and take hydrea and aspirin. I received a letter today telling me a PCR kit is on the way and to use it if i get covid symptoms and this will give me quick access to the new anti viral meds. I was surprised as although I had shielding letters from the nhs , I was never put on the extremely vulnerable list by my GP and my consultant didnt seem to know much about extremely vulnerable lists so i gave up early on trying to be acknowledged as such.Perhaps there is hope for us mpners after all and we are being recognised as vulnerable. it can only be good.
Hi I was never put in the high risk list as a result I waited my turn for my first jab. When boosters were introduced I sent info from MPN voice to my GP.
Hello Azaelea - I’m ET on hydroxy and also lymphoma and got an email this afternoon to say I would be getting a PCR posted and if needs be access to antivirals - makes a change not to have to fight for help - so pleased for Dazakella that the system has worked for her, and hope she recovers quickly. Very best Anne-Marie x
Thanks. Very informative news article. It fills in the background to this rollout. These medications are in trials so we would join the trial from necessity (if we caught Covid and used them). And report to trial for 28 days afterwards. I have received invite email. Thanks again.
That's great news. I've not received an email yet but hopefully will soon as there seem to be several here who have. Just hope it is not a postcode lottery or we have to wait for our GPs to set it up -I've not been lucky with the vaccines so don't hold out much hope if its coming directly from GP surgeries. I would be interested in hearing if others are being contacted.
I haven't heard yet and like you thought oh dear I do do hope it's not another hit and miss thing- but realistically I guess it will be distributed over days so hopefully we all hear in coming days
After reading these entries I checked my junk folder and mine had gone in there yesterday. So maybe check yours too? Most impressed by it all. Thank you NHS.
Hope everyone gets better and keeps safe. Merry Christmas and a Happy Healthy New Year. Xx
That’s amazing! As ET guy said, that would never happen in the US. My sister was exposed to Covid last week. Yesterday she stood for an hour in a long line to get the test. My friend tested positive for Covid on Saturday and tried to get the monoclonal antibodies. The only way he was able to get it was because his son is friends with a medical director of a hospital. Things have gotten crazy here again.
I wasn’t ever out in shielding list etc but have received this email yesterday, so echo what others are saying, system seems to be working now. Email was in my junk folder so worth checking in there if you haven’t received.
Have you got a contact number as I should have received either an email or a letter as I was identified as someone who was CEV and told to shield last year but I’ve received nothing yet about being sent a PCR to keep on hand at home or the details of treatment if positive test results TIA
Sorry, I don’t have a contact number. I have received shielding letters throughout the pandemic from the NHS when I was identified as vulnerable. I have ET and on Hydroxy and Clopidogerel. This recent email came from NHS. Perhaps you could contact them.
Sorry, it’s just the NHS website. I also got letters telling me to shield, like you did so I think you will be receiving this letter about PCR test for us to keep at home. Sorry I don’t know an email address for them. There should be a phone number on their website. Best wishes.
Thanks for posting. I wasn't aware of PCR test emails and kits. I haven't received an email but was placed on the sheilding list as it ended. Maybe It'll arrive soon.
I received my PCR package before Christmas but had nothing explaining what it was about. It scared the living daylights out of me, thinking I had been in contact unknowingly with someone with Covid. I racked my brain wondering when or where this could have happened since there were only a few places I visit but have no direct contact with anyone. After searching the Internet, finding no real information, I eventually found the email explaining everything. I breathed a sigh of relief knowing that the package is for 'just in case'.
I am glad that our MPNs have not been forgotten but I'm not too keen on having yet more new drugs in my body, simply because I hate taking medications! I remember putting my haematology consultant under my 'interrogation lamp'😂 when he told me I would have to inject Pegasys for ET when I was first diagnosed. It still makes me laugh when I think about it.
Anyway, I wish everybody a happy, healthy, safe and covid-free New Year with your families🥳🍾🥂
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