Excellent resource: I just watched a presentation... - MPN Voice

MPN Voice

10,445 members14,398 posts

Excellent resource

hunter5582 profile image
8 Replies

I just watched a presentation on the Patient Empowerment Network that was quite good. This organization has a large set of resources for many types of cancers. This includes an entire set of resources for people with MPNs. Their motto is "knowledge is your superpower." I certainty agree!

Very nice set of information for MPN patients.

powerfulpatients.org/help-b...

Nice presentation on shared decision making.

powerfulpatients.org/2020/1...

Written by
hunter5582 profile image
hunter5582
To view profiles and participate in discussions please or .
8 Replies
Lena70 profile image
Lena70

It was quite good and left me feeling optimistic and hopeful.

mhos61 profile image
mhos61

Thanks for this. Will take a look at my leisure.

EPguy profile image
EPguy

Thanks for the links, I missed 1/2hr interview and was looking for it.

azaelea profile image
azaelea

Thanks Hunter. I will listen to this with interest later today. Regards, Fran

Booagain profile image
Booagain

Thank you Hunter. Excellent information.

Ovingite profile image
Ovingite

Thanks for posting this hunter. It's been quite a while since I looked at the PEN site (like years!) and it has progressed significantly since then. Good info, easily accessed and logically presented - all in all a good source for us.Cheers

John

Hi Hunter l saw this programme and thought it excellent,thanks for flgging it up.Adiwon

Bullace profile image
Bullace

Thanks Hunter very good and useful info.

You may also like...

Handy resource for MPNs

https://www.lls.org/sites/default/files/2021-10/PS81_MPN_Booklet_2021.pdf This is a recent - all...

2022 NCCN Guidelines for MPNs

Comprehensive Cancer Network Guidelines - Myeloproliferative Neoplasms. Nice summary on a number...

Managing Life With an MPN | What You Need to Know

our friends at Patient Empowerment Network. In this webinar, Dr. Raajit Rampal, an MPN...

Webinar re. MPN Clinical Trials as an Option

in the research and care of patients with myeloproliferative neoplasms (MPNs). He serves as...

Announcing a new monthly blog dedicated to young people living with MPNs

researching young MPN patients. Alice says “we youngsters are a rare and special breed in the MPN...