Monocytes and PVC: Monocytes have increased... - MPN Voice

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Monocytes and PVC

lucieboo profile image
6 Replies

Monocytes have increased through this year from zero to now 1817/mm3: I have PVC, on Hydrea 2x daily, no idea why this has happened, nor has doc. Anyone have any info on this? My RBCs are well controlled but leucocytes fairly high. I have no infection. Am I moving on to Leukaemia? See haemo in February, but could ask for earlier if necessary. Much itching!

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lucieboo profile image
lucieboo
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6 Replies
hunter5582 profile image
hunter5582

We chatted on the other thread - but saw the reference to leukemic progression. Short version is I doubt it. Long answer is - go see a MPN Specialist for a better answer about what is going on. Do whatever it takes to get the care you need/deserve. The itch symptom can be dealt with if you get the care you need. Personally, I HATE chronic itching. Glad I found something that works for me.

All the best

lucieboo profile image
lucieboo in reply to hunter5582

Nobody understands the itching unless they have experienced it. I am so glad you have yours under control. Good you think it is not progress to leukaemia. I will take the necessary steps. Thanks a lot for your help and very best wishes.

Mazcd profile image
MazcdPartnerMPNVoice in reply to lucieboo

Hi Lucieboo, no one on this forum can answer your question: am I moving to leukaemia.

This is a medical question that only your haematologist can answer for you. Hunter's reply is only his opinion, and I agree with his advice that you must get advice from your haematologist and I see that on a another post you have asked about haematologists in France and that you are not due to see your current haematologist until Feb next year. I think it would benefit you to see your haematologist before then as you are clearly very worried about your current situation.

Best wishes, Maz

lucieboo profile image
lucieboo in reply to Mazcd

Thank you. I will try to get an earlier appt. Very grateful for your advice.

Inca profile image
Inca

Hi Lucieboo,

My leukocytes were very high some time ago,I was hospitalised for a few days lots of pris de sang! Short story was changed to Rux from Hydrea,all a lot better now but has taken quite some time, hematocrite remains 49 - 50,but I feel lots better on Rux,no itching,more energy,still have to rest in the afternoon a couple of hours,hope you can get sorted soon.I am very lucky to have an M P N knowledgeable G P & Consultant.Very Best to you

Sally.

lucieboo profile image
lucieboo in reply to Inca

Hello Inca

Hope you are doing OK. It does seem to be agreed that I would be better on Ruxo. I'll have to see the haemo. and get dome advice.

All the very best.

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