NHS coronavirus trials: I have just signed up to... - MPN Voice

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NHS coronavirus trials

friendofpiglet profile image
11 Replies

I have just signed up to be contacted regarding the NHS coronavirus trials.

It remains to be seen whether they get back to me on the basis of the info I have given as to my age and health profile. I'm rather hoping to be offered an opportunity to get an early vaccine...

Andy

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friendofpiglet profile image
friendofpiglet
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11 Replies
Sksarj profile image
Sksarj

Good luck with that Andy. Will be interesting to see how you get on. Sue

friendofpiglet profile image
friendofpiglet in reply toSksarj

Apparently, I may not even be contacted if they don't consider that I fit the eligible criteria. So I'm not holding my breath.

AndyT profile image
AndyT

I’ve signed up too but not sure if having an MPN would make them more or less interested in us..!

alastair70 profile image
alastair70 in reply toAndyT

Personally I think you'll be very lucky to be accepted but I hope you are accepted.

I found out a while back that I cant donate blood or be a organ donor because I have ET

Regards Alastair

AndyT profile image
AndyT in reply toalastair70

I think they may still take our corneas but I haven’t checked that recently..!

friendofpiglet profile image
friendofpiglet in reply toAndyT

I am on the donor register on the basis that they can make their own minds up as to whether they want to use any of me or not.

cythemia profile image
cythemia

I have also signed up to test it. They must need people who have conditions to ensure that the vaccine is safe for everybody so I'm assuming that we will be required but in what numbers?

hunter5582 profile image
hunter5582

I just signed up at Johns Hopkins here in the States. There is a major MPN Clinic and research base there, so perhaps they will be interested in someone with PV and NF1. Or not. We will see. Hope we both hear something soon.

friendofpiglet profile image
friendofpiglet in reply tohunter5582

We wait with bated breath...

hunter5582 profile image
hunter5582

Just not holding our breath - we will pass out!

friendofpiglet profile image
friendofpiglet in reply tohunter5582

Ah, well - bated IS short for abated so I guess we shouldn't bate our breath for too long.

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