I had tests for MPN at Hospital following a mild stroke due to high platelets. I had test for JAK2, MPL, PV, Factor v Leiden and lots more. I was told I would be advised of the results. After 3 months I heard nothing. I contacted the hospital and I was then told the results were sent to my GP and must have been ok so not to worry. However not being happy with that I asked for a copy of my results which they agreed. I then contacted a couple of friends who are both GPs and asked if they are qualified to interpret theses results, they said no, it has to be checked my a haematologist. I phoned the hospital back and said did a haematologist check the results they said that's the routine and it must have been ok and a copy would have been sent your GP. I contacted my own GP they said they had not received results, nor were there any results were even on the system and if they were they wouldn't even look at them as they could not interpret the results and it is up to the instigators to have the results checked. I contacted the hospital and said just let me have the results and I will get them checked. They said ok again I didn't receive anything. I contacted the hospital again said no way can you have the results, I insisted and they said no, I told them that I worked for the Ministry of Justice and under Data Protection Act Part ll - Section 7 they have to give this information, they said we are not giving you the information for your own good. I contacted haematologist myself and asked them to send the paperwork to him, which they agreed it showed positive for ET MPL and another mutation. The paperwork had been filled away ! - All the hospital were interested in if I was going to sue for compensation, it was only when I said I have absolutely no interest in doing that, but I obviously know now that you have missed a serous illness and I want to start treatment. Only after this reassurance did they release all the paperwork. Unbelievable behaviour by the NHS.