bloodtest

[Windy51]

Hi this is Windy51

Jak 2 neg

Cal-R neg

Whatever it means I had plateletcountof 890 a month ago I was put on Hydrea two 500mg a day .I had a blood test yesterday my platelets have gone down to 680 so the tablets are doing the job I feel fine on it I think my pain isn’t as bad but the full blood count I have every month is showing cholesterol up slightly and sugar advised to try Mediterranean meal plan also my blood pressure is up it’s never ending so my normal doctor is getting a letter from the hospital to work a plan out for me this month thought I would just check in I was scared about Hydrea at first but I feel better for it I also take Asprin too l am from the Goldcoast Australian is anyone else from here ok keep safe everyone 💖

[Jenny_F]

Thats odd as I have always been told that I only have to take more than aspirin when I reach 1500. How old are you if you dont mind me asking?

[Jennytheb in reply to Jenny_F]

When I was diagnosed JAK2 positive ET 5 years ago I started on 1 Aspirin daily and 4 Hydrea a week (now on 21 H a week but still feeling well). I found that I would "fall to the ground" for no apparent reason. So was taken off this and put on Clopydogrel. All ok now. I think that as I have Menieres Disease too, the Aspirin was reacting to the meds for that but it seems common to start off with Aspirin. Hope you're feeling well. Jenny B!

[Jenny_F in reply to Jennytheb]

I went on Clopidogrel for a while but my periods stopped and when I was having blood tests it was really clotting - turns out I am insensitive to it which is why I went back to aspirin. This heat in the UK isnt helping either as my legs swell up but apart from that all is good

[Jennytheb in reply to Jenny_F]

Hi Jenny F, sorry you had this experience. It sounds as though you are quite ok on Aspirin though? Certainly hope so. Take care.

[Jenny_F in reply to Jennytheb]

Yes aspirin seems to do the jon thankfully. I am avoiding all of the other medications as I am 49 and dont really want to be on them for the rest of my life if I can help it

[Windy51 in reply to Jenny_F]

68

[Lynette1]

Hi Windy51. I'm in Sydney. I've been on Hydrea for over a year now. My platelets got up to 1200 but now they're fairly stable around 500, which still isn't in the normal range but my Specialist is OK with that. I was terrified about going on it at first but I can't say I have any side effects I take an Aspirin every 2nd day.