Pv with covid: Hi everyone I have pv jak2 positive... - MPN Voice

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Pv with covid

Polyruba profile image
15 Replies

Hi everyone I have pv jak2 positive im 49 years old and taking asprin and hydrocarbmite I have had covid for a week now did not know I had it before I had the test. The only symptoms I have had is chest pain sneezing running noise and headaches. We are all different but just through I would put this on here to give info of how it affects us.

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Polyruba profile image
Polyruba
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15 Replies
Susana7 profile image
Susana7

So sorry to read you have got COVID. I hope the symptoms remain mild and you recover very soon. Were you shielding? X

Polyruba profile image
Polyruba in reply toSusana7

Hi Susana no I haven't been shielding was told in March no different to any one else same rules as everyone else.

Susana7 profile image
Susana7 in reply toPolyruba

Thanks for letting me know. It is a lottery who gets the shielding letter and who doesn’t... I also have PV and have got the letter so have been isolating as much as possible, and working from home. I wish you a speedy recovery x

Polyruba profile image
Polyruba in reply toSusana7

Thank you yes it is down to what other things you have wrong with you to whether you get shielding letter.

Breffni3 profile image
Breffni3 in reply toPolyruba

Hi guys what do you mean when you say shielding and shielding letter. I’ve been diagnosed recently with PV jak2 so still learning.

Cja1956 profile image
Cja1956

I hope you feel better soon.

Mich10 profile image
Mich10

Hi wishing you a speedy recovery. Just to let you know I have been receiving shielding letters and I have no other underlying conditions and on aspirin only. Take care :) x

Polyruba profile image
Polyruba in reply toMich10

Thanks

Loubprv profile image
LoubprvVolunteer

Thanks so much, Ithink you have probably set quite a few minds at rest!

hunter5582 profile image
hunter5582

Wishing you a speedy and eventless recovery. Please do let us know how the recovery goes as it will benefit us all to hear experiences of those with MPNs who do contract COVID.

All the best and feel better soon!

Polyruba profile image
Polyruba in reply tohunter5582

Thanks will do.

Jsb45 profile image
Jsb45

Thanks for sharing! I have had Covid as well PV Jak2+ and my symptoms were mild. My wife was not so lucky it is still hanging on around her. My symptoms were more like a mild cold. Still have a runny nose!

tracey13 profile image
tracey13

Sorry to hear you have covid but good news you've got mild symptoms. My husband is your age he's got post PV MF he's working from home so not really going anywhere.This covid is weird I have friends with serious underlying health issues and they have had covid and been ok . Yet we've heard lots of healthy people getting it a lot worse .

Keep safe

patrick333 profile image
patrick333

Hope you are doing ok physically and mentally. Thank you for sharing the information with your tribe.

socrates_8 profile image
socrates_8

Hey Polyruba...

Thanks for sharing this...

It is really interesting to speak w/ someone, anyone who has actually contracted CV–19 while also having an MPN...

Please do keep us informed as to how things continue to develop, and hopefully, it will remain benign of all nasty symptoms for you too...

Best wishes

Steve

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