This is a link to the most recent info on MPNs from cance.gov
Wish me luck- I’m having a staging BMB at the Oxford Churchill hospital today to see where I’m at. Still hoping that I can get pegasys as an adjunct to the rux
Rachelp
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Rachelthepotter
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Hello Rachel - you may already be in getting ‘stabbed’ but sending ‘good luck’ to you. Am guessing you will have a wait to get results back - hoping for you that the oxford team will be open to switching you to pegasys and that treatments for the SSCs are on track.
Very Best Luck Rachel,I have to have another B M B too,at least it's just minutes of stress then home.Worry tho just the same,at least with M F now ,I am checked more .Also on Rux,but consultant thinking of Peg.
Thanks for this link. Useful info. I’m assuming you’ve now had the BMB hope it went ok. Are you being cared for by Professor Mead at Churchill’s? I met him last year - v knowledgeable and caring. Take care. Jacquie x
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