Wonderful Living with MPN’s day

[JojoWonder]

A huge Thank you to everyone who made the MPN Voice day possible yesterday. It was a real struggle for us to be able to attend due to work commitments, logistics and baby sitting but I’m so glad we made the effort. I’m not sure what I was expecting but it was every bit as professionally run as fancy corporate Conference’s I’ve attended over the years. I feel comforted that we have such amazing people out there fighting our MPN corner.

I felt a little star struck meeting Claire Harrison & Ruben Mesa 🤩 - Their book has been my go to reference since diagnosis. When I get confused or overwhelmed it centres me and gets me back to being rational and realistic about my situation.

I didn’t get to meet Maz ☹️ - you were very sought after - so here’s my Hello & Thank you!

Is that enough gushing?!? 😂

It was also lovely to meet some other MPNer’s. What a great bunch we are!

[Mazcd Partner MPNVoice]

Hi Jojo, so pleased you did get to attend the day, sorry I didn't get the chance to say hello to you, maybe at another forum sometime. Best wishes, Maz

[Dylan100]

Hi jojo, I'm very newly diagnosed please could you let me know the name of the book you mentioned by Claire Harrison and Rueben Mesa

Thank you

[JojoWonder in reply to Dylan100]

Hello, thank you for getting in touch. It’s called

Myeloproliferative Neoplasms Fast facts and is available on Amazon.

I hope you find it useful 🙂

[Dylan100 in reply to JojoWonder]

Thank you I will give it a go