Wonderful Living with MPN’s day: A huge Thank you... - MPN Voice

MPN Voice

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Wonderful Living with MPN’s day

JojoWonder profile image
4 Replies

A huge Thank you to everyone who made the MPN Voice day possible yesterday. It was a real struggle for us to be able to attend due to work commitments, logistics and baby sitting but I’m so glad we made the effort. I’m not sure what I was expecting but it was every bit as professionally run as fancy corporate Conference’s I’ve attended over the years. I feel comforted that we have such amazing people out there fighting our MPN corner.

I felt a little star struck meeting Claire Harrison & Ruben Mesa 🤩 - Their book has been my go to reference since diagnosis. When I get confused or overwhelmed it centres me and gets me back to being rational and realistic about my situation.

I didn’t get to meet Maz ☹️ - you were very sought after - so here’s my Hello & Thank you!

Is that enough gushing?!? 😂

It was also lovely to meet some other MPNer’s. What a great bunch we are!

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JojoWonder profile image
JojoWonder
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4 Replies
Mazcd profile image
MazcdPartnerMPNVoice

Hi Jojo, so pleased you did get to attend the day, sorry I didn't get the chance to say hello to you, maybe at another forum sometime. Best wishes, Maz

Dylan100 profile image
Dylan100

Hi jojo, I'm very newly diagnosed please could you let me know the name of the book you mentioned by Claire Harrison and Rueben Mesa

Thank you

JojoWonder profile image
JojoWonder in reply to Dylan100

Hello, thank you for getting in touch. It’s called

Myeloproliferative Neoplasms Fast facts and is available on Amazon.

I hope you find it useful 🙂

Dylan100 profile image
Dylan100 in reply to JojoWonder

Thank you I will give it a go

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