Yesterdays Living with MPNs day

[Sand-Dancer]

Just had to say a huge thank you to everyone involved in yesterdays MPN Patient day in London. Maz and Nona for all their hard work yet again and not least Professor Claire Harrison and the other eminent professors and MPN doctors who gave up their valuable time - thank you to you all. What an amazing day for all involved!

It was my pleasure to meet up with Judy and Chris as pre-arranged and of course the new MPN friends I met on the day (one lady in Oxford Street afterwards too😊) - a big shout out to you all.

This time I came with my son and gave my husband a reprieve to look around London museums etc😊. My son was totally engrossed and tells me he understands much more than he did. My fatigue being the one issue he didn’t fully comprehend until yesterday 😂.

Thanks again until next time. Lesley x

[Inca]

Hi Lesley,

I watched the live streaming of the forum,it really was good wasn't it .

Thought the two M P N ers who spoke were excellent,reflected how I feel and I am sure you and the rest afflicted and not fully understood.

I had to have 'toes up' during the breaks!!!

Definitely the best,tho of course I have not been to many.

Good for you to get there.....even if we were not 'baby sitting',neither G nor I would have got there,we have a ghastly 'virus'that is around,really horrid.

Definitely great Thanks are in order for the the team and the proffessionels,I look forward to the video to watch again.

Keep well Lesley,chat soon.xxxxSally

[piggie50]

Well said Lesley.

Great to meet you, your son and the others.

Xx

[tessa46]

I totally agree, really high standard of conference, all speakers had valuable information to offer and presented in engaging ways. Many thanks to Max and Nina for a wonderfully well organised day!

Thanks again.

[BlushNoisette]

Yes I totally agree. My husband and I have been to a number of Forums and Patient Days over the last ten years and this one was absolutely excellent. We are still learning about my PV and how best to enjoy life inspite of the curve balls that it sends us.

A huge thank you to everyone who helped to make it such an interesting and enjoyable day. Also, thanks to the people that we met during the day for all your interesting conversations.

Very best wishes everyone.

[Riviera]

Yes it was a good day. Well organised but I was knackered by the end of it. glad I made the effort to go though.

[Sand-Dancer in reply to Riviera]

Great word to describe how I was on Sunday too Riviera 😂

[KC63]

Well said Lesley, all those amazing people working so hard for us! Very grateful x

[Kdavie12]

Yes, it was an amazing and for me perfect day.

I am so grateful to everyone who made this day, to all the experts who made time for us, some coming a long way, to everyone who attended, to Chris who arranged for us to meet. Thank you all with all my heart!

[mhos61]

Glad to hear you all enjoyed it. I am awaiting for it to go on YouTube.

[Mazcd Partner MPNVoice]

HI Lesley, thank you for your lovely comments, it was so nice to see you again and to meet your son. Hope to see you again sometime when I am next in Sussex so we can have more time for a catch-up. Best wishes, Maz x