BMB Result

[Blaablaablaa]

I said that I would report back after my BMB results, so here I am! (It was actually a couple of weeks ago now, but I've been having a busy time.) Much to my relief, after the trauma of it all, the BMB confirmed my earlier diagnosis - ET JAK2+, no further complications.

I took a list of questions which my haematologist was very happy to answer and discuss at length; at no time did I feel conscious of any clock-watching or reluctance to answer what may have seemed to some to be slightly awkward questions about the doctor's experience with MPNs etc. She was great and my confidence has been restored.

My platelet levels hadn't really improved, so the medication level has been upped slightly - Mon to Fri instead of just three days per week - and I'll be seeing her again next week. It's still early days and I'm sure things will be stabilised soon.

While I was there I was also approached by one of the super haematology nurses who invited me to the conference in Newcastle the following week, 4th October, - "Looking Back, Moving Forward; Living With & Beyond Haematological Conditions", which I attended. It was a very worthwhile day, the first event of this kind that I have attended and I found it very interesting indeed. (Nice coffee and lunch too!)

The more I think about all this, the more I am convinced that I've had this condition for quite some years. I have only recently gained online access to my medical records; I know for a fact NOW that my blood tests had been coming back with high platelet levels, but nobody picked up on it until I happened to see a different doctor. I had complained to GPs for years about the various symptoms (some of which have definitely improved since diagnosis and medication) but nobody looked at my history, or perhaps it's just that they didn't know what to look for - I had certainly never heard of MPNs. Still, no harm done, fortunately! As Churchill said, "We must just keep buggering on"!

[Cja1956]

I’m so glad you have confirmed your diagnosis. Now you and your doctors can figure out the best way forward. I was diagnosed with ET Jak2 11yeara ago and my medications had to be adjusted several times over the years. Good luck on your mpn journey.

[Blaablaablaa in reply to Cja1956]

Thanks Cja 😊

[Tico in reply to Blaablaablaa]

I won't congratuate you for joining the club, just happy you appear to be more accepting of the condition and welcome. Atb,tina🤗

[Blaablaablaa in reply to Tico]

Thanks Tina 😊

[Anag]

You’re so right. Mine was there for 7 years before it was seen. A third TIA finally brought the diagnosis. Harm was already done. Quite a bit of memory loss. But things are looking up. I’m hopeful, diligent in supporting my body and mind as much as possible. So glad to hear you so positive and to have you with us. 😁

[Blaablaablaa in reply to Anag]

Thanks, Anag. Sorry to hear they didn't catch yours in time, but I hope you're properly on the radar now and good to hear you're taking charge of things.

[Anag in reply to Blaablaablaa]

😁