Mds/mpd overlap : Hi I have recently commenced... - MPN Voice

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Mds/mpd overlap

Nurset profile image
6 Replies

Hi

I have recently commenced hydrea to reduce platelets but I’m worried about potential fall in Hb. Has anyone had experience of this

Nurset

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Nurset
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6 Replies
Osteomyelio profile image
Osteomyelio

Yes, my hemoglobin went down after HU (hydrea)

Nurset profile image
Nurset in reply to Osteomyelio

Can I ask how they treated that?

Eadaoin profile image
Eadaoin

I recently had to take Hydroxy to prepare for a serious heart operation and needed my platelets to reduce to a very low level. The white and red cells (and Hb)also dropped. Soon after discharge I had an iron infusion to improve the Hb. It has taken 5 months for all my blood results to return to an acceptable level - though my platelets are still rising and will presumably stop at their usual high ET level. I also have an MPN/MDS overlap - not many of us about 😀

Nurset profile image
Nurset in reply to Eadaoin

Thanks Eadaoin

That’s very helpful. How long since your diagnosis?

Eadaoin profile image
Eadaoin in reply to Nurset

21 years. I am now 76. The ET was found by chance in tests for other things in 1998. The MDS overlap was found a couple of years later though it is likely to have been there all along. I hope you are receiving good care and you feel confident in your doctors. How long since you have known about it?

Nurset profile image
Nurset in reply to Eadaoin

I’m only recently diagnosed and assumed prognosis was very poor so thanks for that.

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