I have ET JAK2 and have had it for many years. Last year I started to feel exhausted and I couldn't quite explain the degree of my feelings to my GP. Over Christmas my GPs surgery was closed so I visited a clinic that specialises in bone repairs. This stranger to me asked if he could give me a heart Xray and CT Scan. He diagnosed me with a long standing pneumonia, he thought 9 months +, he said that it had scared my lungs. My white blood count was normal and when I told my GP that I was very pale (white) he told me to get some sun. He was just frustrated and despite telling him I had spent nearly a year in bed other than when I prepared meals, he didn't believe me. Has this happened to anyone else? I am still far from recovery. I lost use of my muscles. Am I at risk of having this happening again?
Cheers Anna