Waiting for a donor

[Brienne]

We had good and bad news yesterday re husband’s MF. No donor match on the international register (we already knew his sister is not a full match), apparently this is very unusual, the clinic had previously been very optimistic that finding a donor wouldn’t be a problem. The good news is that his MF is still low risk so time is one our side. Trying to be proactive and publicising stem cell donation as far and wide as possible. Any others managing MF whilst waiting for donors?

[JediReject]

Hi Brienne , , I'm sorry to read about your husbands predicament not having a full match donor , I can't imagine how you are both dealing with it. I was fortunate in that my only Sister was a match and didn't need to access the Registers. I guess I never truly appreciated how fortunate I was. I never knew if there were any other matches but I have known peops who have had several.

Like you say it is good news that he is low risk and you must both take heart from that and all the current / future drugs and research for MF which will hopefully mean any transplant will be many years away.

Good Luck to you both.

Chris

[MFBMT2011]

Yes, the other Chris is right in that low risk is a positive and new donors will be joining the registries worldwide on a regular basis. Friends of mine run a charity called Genny’s Hope to encourage and pay for (they have registration fees) students in the USA to join.

You are right to encourage friends and family to join the UK registries. In the uk Anthony Nolan have a 16-30 age range, Delete Blood Cancer 17-55 and the National Database Is 17-40.

Good luck with your quest.

The other SCT Chris.

[Wyebird]

Wishing your husband well x

[Bluetop]

I do hope a donor is soon found.Good luck

[tracey13]

Fingers crossed for your husband.

My husband is stage 1 MF they have found 9. 10/10 matches unrelated for him .

Transplant team have said he's got and well and no way needing a transplant yet .

We hoping he never needs a transplant and that medication can keep it at bay.

There new medication coming out all the time so stay positive .

TRACEY

[katiewalsh]

Hi. Sorry to learn there’s no match yet but as others, more knowledgeable than I, have said, how great the he’s low risk and has time. Nevertheless, I’m sure it’s all quite stressful for both of you. Please remember we’re always here for you & wishing all good things. Katie

[babbittybumble]

Hello , So sorry that your husband does not have a match as yet, but every day new people join the register as bone marrow donors worldwide..Our son has PMF but is very fit and well thankfully. His two brothers and sister are not a match for him either .As the two Chris s have there is a lot of research being done for MF with new drugs being trialed.. Take care Bye Gill