ET, PV, BMB: Hi everyone, Love this website, lots... - MPN Voice

MPN Voice

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ET, PV, BMB

Meatloaf9 profile image
6 Replies

Hi everyone,

Love this website, lots of helpful information and encouragement. Please keep being positive. Diagnosed a few months ago with ET but Blood counts (rbc, hct, and hgb continue to rise, almost above normal levels at this point). Having a BMB tomorrow for the first time. Does anyone know if the BMB can determine whether I have ET or PV. I am Jak2+.

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Meatloaf9 profile image
Meatloaf9
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6 Replies
Timjonze profile image
Timjonze

Hi and hope you’re coping with the new diagnosis - it’s a weird time for sure. Someone else with more experience will no doubt be along with a better explanation but from what I know in my short time learning about MPNs - a BMB should be able to tell you if it’s ET or PV or even a combo of the two. However there are grey areas where clinicians don’t always agree and some people aren’t quite as easy to classify as others (I’m one of those that doesn’t fit into a nice easy box). Good luck with the BMB results - waiting is always such a difficult period x

Meatloaf9 profile image
Meatloaf9 in reply toTimjonze

Thank you

Ebot profile image
Ebot

Yes it can! But as Tim says it’s not always clear cut. It should at least give your doctors a clearer steer on treatment etc. And more importantly it provides a base line against which to measure disease progression. All the best.

Meatloaf9 profile image
Meatloaf9 in reply toEbot

Thanks and good luck to all on this website.

Joe1117 profile image
Joe1117

Meatloaf9 i hope you are well. Just wondering about your BMB results. I am having slight increase in red blood cells as well. Still within normal range though. Was it ET or PV?

Meatloaf9 profile image
Meatloaf9 in reply toJoe1117

Hi Joe, still doing well so far. BMB was read at two different places as ET. Blood test last week showed a HGB of 16.5 and Hct of 50. These values are within the normal limits of the local lab where tests were done. Must be changing , platelets were 509. Thanks and best of luck to you.

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