Hello Lovely members,
I have ET ( JAK2 ), aged 56 and for 9 years just took I Cartia per day (1/2 aspirin) as level was around 900. This year, I had an atypical stroke/seizure whilst asleep (after forgetting to take the Cartia) which showed up clearly on an MRI, so I started Hydroxurea (Hydrea) at 1 capsule a day and reduced platelets from 1.1M to 850 over the course of a few weeks.
As I am to travel in 2 weeks the Haemo has increased my dose to 2 tablets a day to get them lower before I take my 24 hour trip from Australia to UK. I am having awful nightmares which is very unusual for me. Has anyone else experienced this? I think I may have a glass wine on the nights when this occurred so wonder if anyone noticed this effect either? I am also extremely tired.
I have also just been diagnosed with extra genetic risk factor of Leiden's Factor 5 so 5 x more likely than average to have a stroke so very glad I accepted the Hydroxurea and am lowering the risk but look forward to any nightmare reports although I don't wish them on anyone as so real and scary! Elzbietta xx