JAK2 Negitive: I have JAK 2 -ve but my RBC and HGB... - MPN Voice

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JAK2 Negitive

Waheed1 profile image
3 Replies

I have JAK 2 -ve but my RBC and HGB is high in JAK 2 -ve is there any possibility that i have PV?

Please help me with your experiences!

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Waheed1 profile image
Waheed1
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3 Replies
Aime profile image
Aime

Hi, I’m sorry we are not medics on this forum but a big welcome to you. You must be diagnosed by a haematologist. If you have a look at the MPN Voice website, you will find trustworthy information on there which will perhaps help you get some answers .

If you have PV, you will get a lot of support here. Kindest regards Aime x😸

socrates_8 profile image
socrates_8

Hi Waheed... :-)

Of course there are always possibilities, however, it would be best for your doctors to test you further as there are many other types of mutations that you might still have, such as: MPL, CALR or even Triple negative?

Of course, only further specific tests are able to determine or exclude those other driver mutation possibilities...

As Aime mentions below, best ask your Haematologist to assist you with having some other tests done...

Best wishes

Steve

(Sydney)

Wyebird profile image
Wyebird

I’m sorry I can’t helpmany people are Jak2 negative yet still have an MPN. Only a specialist can help you.

Ask as many questions as possible when you have your next visit.

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