Oh no here we go again: Still waiting for my... - MPN Voice

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Oh no here we go again

Vicky_b profile image
Vicky_b
ā€¢7 Replies

Still waiting for my official diagnosis of suspected PV. (Hopefully next week) and the terrible pains in my thigh bones have started again tonight šŸ˜¢

What do you all do or take for this if you get it?

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Vicky_b profile image
Vicky_b
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7 Replies
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jane13 profile image
jane13

paracetamol - don't take brufen, will alcerate yr stomach

beetle profile image
beetle

I recently learned that bone pain can be a result of vitamin D deficiency. Itā€™s worth getting that checked out. Itā€™s too soon yet to tell if vit d supplement will help me. I am apparently ā€œprofoundlyā€ vit D deficient

Vicky_b profile image
Vicky_bā€¢ in reply tobeetle

Thankyou, goid idea. My son has just been put on a massive 'loading dose' of vitamin d as he was depleted. He had tiredness and aches but has other conditions that we put it down to. Think I'll get mine checked next time too.

Hope yours helps you šŸ˜Š

katiewalsh profile image
katiewalshā€¢ in reply tobeetle

Hi. I think I just read a recent report from Cleveland Clinic in US (highly respected Clinic/Hospital) that you need magnesium to absorb vitamin D. So if they recommend you take Vit. D, Iā€™d research that. Katie

beetle profile image
beetleā€¢ in reply tokatiewalsh

Thank you for that. Just a quick google confirms what you are saying about magnesium. Neither my haematologist nor GP know much about vitamin D supplements so I guess it will be up to me to research! I notice a couple of articles refer to mortality as a result of vitamin D deficiency so I am now going to set to and do some homework! One of the most annoying symptoms I am getting is severe sweating from my head and neck. My face drips sweat at times. Ugh! I recently read that this can be a sign of vit D deficiency so I am hoping to become a complete new woman when Iā€™ve done this researchšŸ˜‚šŸ˜‚

Bluetop profile image
Bluetop

I usually find that drinking (even) more water helps with my bone aches.

Vicky_b profile image
Vicky_bā€¢ in reply toBluetop

Thankyou I'll try that šŸ‘

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