Oh no here we go again: Still waiting for my... - MPN Voice

MPN Voice

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Oh no here we go again

Vicky_b profile image
7 Replies

Still waiting for my official diagnosis of suspected PV. (Hopefully next week) and the terrible pains in my thigh bones have started again tonight 😢

What do you all do or take for this if you get it?

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Vicky_b profile image
Vicky_b
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7 Replies
jane13 profile image
jane13

paracetamol - don't take brufen, will alcerate yr stomach

beetle profile image
beetle

I recently learned that bone pain can be a result of vitamin D deficiency. It’s worth getting that checked out. It’s too soon yet to tell if vit d supplement will help me. I am apparently “profoundly” vit D deficient

Vicky_b profile image
Vicky_b in reply to beetle

Thankyou, goid idea. My son has just been put on a massive 'loading dose' of vitamin d as he was depleted. He had tiredness and aches but has other conditions that we put it down to. Think I'll get mine checked next time too.

Hope yours helps you 😊

katiewalsh profile image
katiewalsh in reply to beetle

Hi. I think I just read a recent report from Cleveland Clinic in US (highly respected Clinic/Hospital) that you need magnesium to absorb vitamin D. So if they recommend you take Vit. D, I’d research that. Katie

beetle profile image
beetle in reply to katiewalsh

Thank you for that. Just a quick google confirms what you are saying about magnesium. Neither my haematologist nor GP know much about vitamin D supplements so I guess it will be up to me to research! I notice a couple of articles refer to mortality as a result of vitamin D deficiency so I am now going to set to and do some homework! One of the most annoying symptoms I am getting is severe sweating from my head and neck. My face drips sweat at times. Ugh! I recently read that this can be a sign of vit D deficiency so I am hoping to become a complete new woman when I’ve done this research😂😂

Bluetop profile image
Bluetop

I usually find that drinking (even) more water helps with my bone aches.

Vicky_b profile image
Vicky_b in reply to Bluetop

Thankyou I'll try that 👍

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