Most of the time I think our NHS is wonderful but every now and again I get VERY frustrated. My haematologist started the idea of beginning the pacritinib trial at a hospital near me several months ago. Each time I see him he tells me that he hasn’t heard back from someone! He eventually said he would ask our favourite Professor for some advice. My last appointment 5weeks ago I saw a colleague of his who told me that he had actually heard my consultant dictating the letter before he went on holiday. I saw my usual consultant today and he told me he had not had a reply. He started to look into it and discovered that it didn’t look as though the letter had ever been sent!! He also found a letter from February about something else that had never been sent. He said he knew that there had been admin problems at the hospital but it seems the way they have managed to catch up is by selecting which letters to write and ignoring the rest! He was almost as unhappy about the situation as I am but at the end of the day it is not impacting his life! He is now going to email the Prof for some advice so it will have been delayed by yet another 4 weeks and if they do start the trial nearer to me it will not happen overnight!
Sorry for the vent because I always try to be positive in posts I put on here but every now and then I have to vent to folk who actually understand my frustration
I hope we are all as well as we can be. Best wishes, Jan