Atrial fibrillation : Hello, Has anyone developed... - MPN Voice

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Atrial fibrillation

Juliet46 profile image
8 Replies

Hello, Has anyone developed atrial fibrillation that has been attributed to either ET or the medication ? I’ve had a couple of episodes and with the latest one my Dr sent me to A and E for treatment and I will have to see a cardiologist.

Thankyou

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Juliet46 profile image
Juliet46
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8 Replies

I have been diagnosed with ET and on Hydroxycarbamide for over 7 years now. For about 4 years I have been diagnosed as having permanent AF which rather than ablate or operate in anyway they are medicating with Amiodarone, they had to give me a few zaps with Cardioversions along the way.

However neither the Cardiology or Haematology teams have ever suggested that my ET or Hydroxycarbamide were to blame. I did ask whether there was a link as they found a PFO, a small hole in the heart, and I suggested that this would allow oxygenated/de-oxygenated blood to cross to the incorrect chambers of the heart but all they said was that the flow through the hole is minuscule. I could not find any evidence online re my theory but when looking didn’t find anything relating AF to ET either.

Juliet46 profile image
Juliet46 in reply to

Thankyou for replying! I’m noting everyone’s comments and will see what my haemo says next week.

PhilReade profile image
PhilReade

Hi yes I’ve developed arterial fibrillation I had 24 hour monitor I’m on hydroxycarbamide 1500 mg daily I had a recent TIA I’m now on Apixaban and Irbesarten as well as Amlodipine for blood pressure

I had a splenectomy in 2014 I have E T

I’ve had episodes of blurred vision to for 4 years

Not sure if hydroxycarbamide causes heart Fibrillation

Let me know if you connect it please

Thanks

Phil

Juliet46 profile image
Juliet46 in reply to PhilReade

Thankyou for replying.

flfair profile image
flfair

Hi Juliet, are you taking magnesium .

livingwithatrialfibrillatio...

Peter

Juliet46 profile image
Juliet46 in reply to flfair

No, I don’t take any supplements yet, thought I would ask my haemo if I should.. Thankyou for replying!

Mica11 profile image
Mica11

At my last hospital appointment I was discussing a really annoying tickly cough that will not go away. He sent me immediately for an ECG and a chest X-ray.

He said that in some rare instances Hydroxycarbamide can cause heart and lung problems.

Hope all goes well with cardiologist Juliet.

Grace.

Juliet46 profile image
Juliet46

Thankyou!

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