Apparent polycythemia and B12

[Gcart]

Hi I wonder if anyone can advise me about my husband

He has what is called apparent polycythemia has had venesection sin the past but is just being monitored by GP . They are happy with him .

I notice that he has said fairly low B12 blood count and with everything I have read and know it would be wise to supplement .

Does anyone have experience of this and is it wise to do so .

His level is 302 and all that I read it should be at least 500 .

I notice he has symptoms and want to help if poss.

Thanks in advance.

[Ebot]

Definitely raise with your haematologist or GP. Certainly the team at Guy’s were very happy to investigate. (My levels were fine.) Others on this Forum mention having B12 injections. I believe if counts are low then the jabs can make a real difference to sense of well-being.

[Gcart]

Thankyou Ebro that was helpful probably consult first but looks like safe to supplement

[cwayman11]

Hi...mine was 220 which is still technically above the threshold. Many docs won't do anything unless below 150 so I pressed my haematologist to consider it and he put me on injections. I was originally diagnosed with PV but as all tests came back negative this is now ET which is secondary polycythaemia.

Claire x

[wendycu]

Hi. I have E.T. I receive B12 very 3 months. It makes a real different for me. I know when I need it because I get very tiered. Once I get the injection within 3/4 day I feel much better. I have asked my doctor for folic acid 5mg now as it helps with bone ache/ arthritis.

[Gcart]

Thanks for gettingback. Good info. X