I am confused and a little angry with my 3 month check up today. I have seen a dr that I had not seen before, I have just moved hospitals and my notes still have not arrived after 3 months.
Basically the dr I saw has stated that I should not be on hydroxy unless my platelets are nearing or have ever been 1500+, they have been in the 400's since I started treatment, he said the reason I was on them is due to me being part of the PT1 trial, and as he never had my notes he cannot tell whether my platelets have ever been 1500.
I asked him direct, are you telling me I have been poisoning my body for 2 years for nothing, to which he replied "it's upto you if you come off of them"?????
I said you are the dr you advise me, he then said as he doesn't know my previous platelet counts I need to stay on them.
Well do I need them or don't i? Do I just stop taking them and carry on with the aspirin?
I'm angry that as to why he has been the only dr to say this to me and I may of been taking these when I didn't need to.
I will ask to see the consultant at my next appt and get a definitive answer but has anybody else had this problem?