I had a clinic appointment last week and when I got to the hospital, discovered that my usual haem was unfortunately on leave for 6 months. They’d therefore drafted a replacement in whom I saw, who immediately recommended I go on hydroxy or Interferon.
Now, my usual haem has seen me for 4 years since diagnosis, and taking into consideration my age (48) and the fact she sees me as low risk, has been happy to continue with aspirin and venesections. I have PV, am jak + and I have raised platelets which have been around the 750 since diagnosis. I also have high WBC count.
So I’m a bit confused - it seems that test results are open to interpretation and opinions can be divided as to the best way forward. I must admit it came as a bit of shock as it was not what I was expecting, so haem sent me away for 2 weeks to think about it.
I’m really not sure what to do. There seems to be a school of thought for younger patients to hold off as long as possible but another, to start on Interferon as soon as possible, which I am considering.
I was just wondering if anyone else has found themselves in a similar position? And if so which way did you go?