Blood books.: Ha, result!!! thanks again to... - MPN Voice

MPN Voice

10,832 members15,126 posts

Blood books.

amhann profile image
5 Replies

Ha, result!!! thanks again to shiftzz (+ rock on Rachel with the hope we can get an official book) Took my home made version of a ‘blood book’ to my hospital appointment having filled it with what sketchy counts I had previously managed to wrangle out of them, and apart from looking abit ‘taken aback’ to be asked, I actually got ALL my results written in!! Platelets are up a smidgen (boo - though not too far above normal) However I could see at a glance all the others well within normal (so all okaykok as I’d been fretting a bit that the hydroxy might mess with the other counts).

Told her I might be able to get an official version at some point - she didn’t seem madly enthusiastic but I’m sure I’ll be able to ‘train’ them up to put pen to paper each time!!!

Written by
amhann profile image
amhann
To view profiles and participate in discussions please or .
5 Replies
Rachelthepotter profile image
Rachelthepotter

Brilliant! I was thinking of doing the same thing for me personally alongside keeping up the pressure to get an official one. Limerick hospital have very kindly sent a blank one to my home address which I’ll see when I get back from the meditation course I’m on. I need to de- stress. And its good to have nice food prepared by someone else.

Lots of love

Rachel

amhann profile image
amhann in reply toRachelthepotter

I would highly recommend it -went in knowing exactly what counts should be (if I was ever normal!), what they were when this journey started, and where I’m at now (simple but super helpful at appointments)

Keep us posted if that’s ok with you - happy de-stressing sessions + wish you all the best. x

francesb profile image
francesb

Hi, I have notebooks going back 5 years where I've recorded the main results of my FBCs each time. I don't bother with every single reading, only the relevant ones. My consultant automatically reads them out to me at the start of each consultation, he's never minded. Sometimes I spreadsheet them if I'm looking for a pattern. I wouldn't be without my little book for anything! Best wishes Frances.

lizzziep profile image
lizzziep

I get a copy of the blood results to take to the hospital pharmacy with my prescription, I always take a photo of this on my phone, then fill in the results on a spreadsheet when I get home. Best wishes Lizzie

ChrisAnnSen profile image
ChrisAnnSen

I ask for, and get, a print-out of my blood test results and then enter the figures into a spreadsheet at home. I've checked the 'normal' range and put that into the spread sheet too, then create a chart so that I can see at a glance what the trend is. So far my platelets are going down and almost 'normal' and none of the other readings are outside the usual range.

I'm not a whiz on Excel spreadsheets but have managed to do it successfully.

Not what you're looking for?

You may also like...

Blood books : patient held haematology records. The story continues

Hi Just thought I’d update on what’s happening with the project. The team at Guys are picking up...

Blood book update -ready on Thursday 17th May

Hi Just to update you on progress with the "blood book" - the development at Guy's of a (paper...

Blood Results

I've been on Anagrelide for 2 weeks now (after 3 years on hydroxy) and have been to the hospital...
lizzziep profile image

Blood Books for recording and sharing blood results and medication - examples wanted!

Hi The idea of an ongoing single "Blood Book" in which all hospitals and GPs providing care for...

Pegasys and Low Blood Counts

Hi Everyone, Can Pegasys (Inteferon) lower your counts too much? I've been taking Pegasys for just...
MarieNZ profile image

Moderation team

Debinha profile image
DebinhaAdministrator
Mazcd profile image
MazcdPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.