Is it useful if we pool our shared experiences on how to minimise symptoms into one tread?
My ‘tips’ would be (and no science here!)
To combat itchy legs post shower/bath, immediately apply Epaderm cream and then trousers/tracksuit bottoms. Lack of air seems to help.
To combat night leg cramps I gently stretch for 10 mins before bed, every conceivable muscle group incl arches in soles. Working theory is that nuts (especially Brazil) exacerbate cramping?
The big one is anti inflammatory diet but this is early stages and very much work in progress. Avoiding refined sugars/carbs and processed food, red meat (iron), most oils other than olive/coconut, lots of fruit, veg, oily fish. Omega 3 > Omega 6. Green/camomile tea. Flax seeds. Will probably end up in a padded cell (especially the 99% dark chocolate mixed with olive oil in my porridge) but the big anti cancer buzz word at the moment seems to curbing inflammation.
Unlikely to be doing me any harm and might pay off, there is an MPN anti inflammatory diet trial ongoing in the States so waiting with interest for conclusion.