I missed you so I'm back to chat ,,,,how you doi... - MPN Voice

MPN Voice

11,260 members15,742 posts

I missed you so I'm back to chat ,,,,how you doing ??

Twinkly profile image
5 Replies

It's 4 years since I was invited by my specialist doctor at Cambridge hospital .to join the majic trial ...I agreed to trial ruxulitnib the then. New drug from USA .. I turned a corner that day ,. Changed my lifestyle as I started to really think how much I valued my life ,So new diet began ,,gave up all red meat ,especially Pork .eating all green growing veg and fruit . As the excess weight and flab went ..my spirits began to lift .

Drinking clean filtered water ,home made juices washing away all the toxins not needed ,my blood results were better ,so all I can say is "thank you" to my trial team .been there for me ,,everyday is my bonus ...I'm well and very ,very ,happy !!❤️😘💜😍💙. That's. Me. Twinkly. ,X!xxxxxxx

Written by
Twinkly profile image
Twinkly
To view profiles and participate in discussions please or .
5 Replies
Helen1952 profile image
Helen1952

Lovely post Twinkly xx

Poppy6060 profile image
Poppy6060 in reply toHelen1952

Hi Twinkly your post is just what I needed to read I need to change my life style my diet is bad I don't do that much exercise but when I do eat well and walk more I do feel better so tomorrow I am starting to change. So good to hear you well and thank you for being on the trial the drug seems to be doing very well you have a good day best wishes Poppy

crapaud profile image
crapaud

Glad to see you're feeling well and in good spirits as usual.

Keep up with the 'bright' postings.

Crapaud

Superwoman profile image
Superwoman

Good to see you are feeling really good Twinkly, it is amazing that just by doing a few life style changes how you seem to get your mojo back, when I was told that I had ET just over four years ago now I also changed my life style, plenty of water, fresh fruit and veg also started to eat a lot more fresh fish, also lots of exercise and for me I now feel great, it is such a change from always being unwell, I have so much more energy even when I have to run around or look after my grandchildren.

I have found that I also sleep so much better which is a bonus.

So onwards and upwards, great to hear from you.

Jean x

nivana profile image
nivana

Great to hear from you Twinkly - you are certainly sparkling with all your healthy eating and juices. Keep well.

Not what you're looking for?

You may also like...

Post to Lizziep-How are you doing?

Hello, Was reading your old post of approx. 6 mos. ago, explaining your reduction in taking the Hu...

Two Besremi doses and the itching begins!!

So I am off the Bomedemstadt clinical trial and just began Besremi on 10/9. I am on 50 mcg, which...
Miriammusic profile image

I missed you all .but been feeling a bit ucky!

Been to the clinic ,because my spleen is uncomfortable ..it's making me sick at night ,Im getting...
Twinkly profile image

BBC4 iPlayer documentary

I’d highly recommend a documentary which is on BBC4 iPlayer about a new trial for leucemia. It’s...
hybiscus profile image

How to register as high risk if you have not already been informed that you are on the register

Hi all, Am new to this site, but hope I am able to make a very useful contribution Spoke to my GP...
denisep12 profile image

Moderation team

Debinha profile image
DebinhaAdministrator
Mazcd profile image
MazcdPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.