I missed you so I'm back to chat ,,,,how you doing ??

It's 4 years since I was invited by my specialist doctor at Cambridge hospital .to join the majic trial ...I agreed to trial ruxulitnib the then. New drug from USA .. I turned a corner that day ,. Changed my lifestyle as I started to really think how much I valued my life ,So new diet began ,,gave up all red meat ,especially Pork .eating all green growing veg and fruit . As the excess weight and flab went ..my spirits began to lift .

Drinking clean filtered water ,home made juices washing away all the toxins not needed ,my blood results were better ,so all I can say is "thank you" to my trial team .been there for me ,,everyday is my bonus ...I'm well and very ,very ,happy !!❤️😘💜😍💙. That's. Me. Twinkly. ,X!xxxxxxx

5 Replies

  • Lovely post Twinkly xx

  • Hi Twinkly your post is just what I needed to read I need to change my life style my diet is bad I don't do that much exercise but when I do eat well and walk more I do feel better so tomorrow I am starting to change. So good to hear you well and thank you for being on the trial the drug seems to be doing very well you have a good day best wishes Poppy

  • Glad to see you're feeling well and in good spirits as usual.

    Keep up with the 'bright' postings.


  • Good to see you are feeling really good Twinkly, it is amazing that just by doing a few life style changes how you seem to get your mojo back, when I was told that I had ET just over four years ago now I also changed my life style, plenty of water, fresh fruit and veg also started to eat a lot more fresh fish, also lots of exercise and for me I now feel great, it is such a change from always being unwell, I have so much more energy even when I have to run around or look after my grandchildren.

    I have found that I also sleep so much better which is a bonus.

    So onwards and upwards, great to hear from you.

    Jean x

  • Great to hear from you Twinkly - you are certainly sparkling with all your healthy eating and juices. Keep well.

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