Feeling better today

[skipperL]

After such an awful day yesterday I have woken up feeling relatively normal - what a strange illness this is! A big thank you for the support received yesterday......

[Lainy1]

So glad to hear it, I on the other hand feel like I've been run over by a bus and have a burning feeling in my stomach. Probably my first hydroxy I took yesterday. Hope you continue to have good days skipper.

Best wishes lainy 😙

[skipperL in reply to Lainy1]

Poor you - but I'm sure it can't be a side effect of the HU yet - probably like me you were terrified of starting a toxic drUg - how one feels each day is so variable x

[harleydavidson in reply to Lainy1]

Hi Lainy. Hope you are feeling better and good luck with the hydroxy. Love Mel x

[Lainy1 in reply to harleydavidson]

Thanks Mel, it's not as bad as I thought it was going to be. Really staying well hydrated must be helping.

Hope your well

Lainy 🤗

[lizzziep]

Oh the years I've strived to be normal - from well before the ET kicked in!!

(pleased you're feeling ok - hope it lasts)

Best wishes

Lizzie

[skipperL in reply to lizzziep]

Still feeling relatively OK - but you never know what the next day will bring - very difficult making plans We have to keep going - thanks for your good wishes

[tuffetgal in reply to skipperL]

hi skipperl

i read a few months ago from someone with pv and jak2 that she/he planned their activities. i have found that if i have moderate activity one day to rest the next, for a full day, i rest for two following days. i am 75 and still fairly active and i hope still fairly sharp. i have also discovered when i push myself my i.q. / common sense takes a nose dive. so listen to your body and keep on reading these blogs. they have helped me immensely.

[Lainy1 in reply to lizzziep]

Thanks Lizzie, few things falling into place with diagnosis. Just thought it was old age at 48 hee hee. Hope your doing well too.

Best wishes lainy xx

[skipperL]

You are right - one must be sensible. Unfortunately when I feel well I probably overdo it - I am 78 but always have felt much younger. Yesterday was a really good day but today I went down with a bad bout of vertigo ( labrinthitis) which has no connection with any of my other ailments - so now I am marooned in bed taking more pills. A forced rest!

[harleydavidson]

Good for you x

[skipperL]

Thanks, but in the intervening time since I posted I have had a really bad time being struck down with BPPV ( vertigo) and was unable to get off the bed for days. Meds and Physio are making me better slowly - but it is depressing - what next I wonder! My HB seems to be dropping again - maybe they will give me another transfusion - I felt really good after the last one - but it doesn't seem to be enduring.