night time cramps

I was diagnosed with ET last year and take Hydroxicarbamide (x2 daily) and asprin. Recently I have been getting really bad cramp in calf and thigh, usually coming on in the early hours after a couple of hours sleep.

Is this common? Is it anything to do with the ET and medication or just a coincidence? I have tried herbal remedies, magnesium rub, tonic water for the quinine, together with trying to stay well hydrated, but nothing is working. Any thoughts and suggestions would be most welcome.


3 Replies

  • Hello Stephen

    I'm sorry you are troubled with cramps. I've had them off and on over many years and haven't got a satisfactory answer. I have been told to take a bit more salt. Counter to general diet advice. The cramps have lessened. But would they have anyway? Agee crisps near the end of the day.

    I hope they go away soon.


  • Hi Stephen I also get excruciatingly painful cramps in the thighs at night. The only thing that works for me is quinine sulfate, prescribed by my GP. I only get them occasionally now as long as I don't stop taking the quinine.

    Hope you get some relief soon. Karen

  • Thanks for these suggestions. My haemo has suggested quinine and my doctor is due to prescribe some. Also the evening crisps!

    hoe it goes away, could do with a full night's sleep


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