Thank for your support recently. I went back to see my consultant yesterday. I'm jak2 positive so I've got pv.
He wasn't bothered about my liver levels, although my kidney results warrant monitoring.
I forgot to ask about my spleen as I seem full all the time.
I forgot to ask for a print of the blood test (do I ask the consultant or someone else -uk)
I'm back tomorrow for my first venesection...
Well congratulations on getting a diagnosis!
If it's any help I just write down the 4 main blood counts in my dairy, so I have all my results going back years in 1 place: sometimes easier than getting a print out tho gives fewer details.
Who do you get them from? I think my brain was busy panicking and not paying attention!
Yes, I know how that feels! When I get in to see the doc/consultant I just get my diary out and ask them for the results and they read them out off their screen. They soon get used to this as a routine! I collect Wt, plts, Hb and HCT (with PV). Then I can have a look at my leisure. Usually no good asking a nurse as they can't usually get into the results screen.
The diary is a great tip. Write down any questions before you go into your appointment with the hematologist.
When they give me my prescription at the hospital to take to the hospital pharmacy there is usually a print out of my blood results with it, so I take a photo of it with my phone and when I get home I put the results in a spread sheet I have made for them so I can see any differences - (I'm retired I have the time!!)
Best wishes
Lizzie x
Thanks!
easier to see trends with yr cell counts too if u have them in nice neat columns in yr diary - I also mark where I had a venesection and what dose of HU I am on. 
BMB pathologist won't commit to a diagnosis?
New Diagnosis
Have I got PV?
What's a consultant?
Does being jak2 negative pretty much rule out mpn?
