Don't Miss MPN Event Saturday

[andrewschorr]

Please consider joining me at MD Anderson in Houston this Saturday OR attending live online. We'll hear the latest about all 3 MPNs (MF, PV, ET) from Dr. Verstovsek and other world renowned experts and experienced patients and caregivers: patientpower.info/event/mpn...

[Hidden]

Thanks, Andrew!

[socrates_8]

Thank you Andrew, it could prove most interesting...

Steve

(Sydney)

[crapaud]

Is there an offline 'replay' programmed? USA central time is 7hrs behind central Europe - at a time when I'm getting hit over the head by my wife for not respecting sleeping patterns due to my cortisone 'live following would be difficult' - though very interesting !

Anything specific on PMF SCT and treatment of chronic GvHD?

Regards

Crapaud

[andrewschorr in reply to crapaud]

Yes we always have a replay within a day or so. Just be signed up for alerts on patientpower.info. We'll also post interviews and video clips.

[crapaud in reply to andrewschorr]

I'm registered on Patient power but can't remember how to be alerted - I'll keep a lookout for it.

[andrewschorr in reply to crapaud]

On our event from City of Hope in a couple of weeks we'll cover transplant and complications, for sure.

[crapaud in reply to andrewschorr]

There'll also be an opportunity to sign up for that one - Central time also?

[andrewschorr]

of course! it's listed on the PatientPower.info/events page now.

[crapaud]

Hello again,

The meeting at City of hope Duart looks particularly interesting for me - deals with transplant questions - I had mine just over a year ago and am having a few chronic complications (just switched from corticoid based treatment to Ruxolitinib which seems to be doing the trick).

As part of my 'family home therapy' I want to keep the illness out of the spotlight, especially the WE. Will the presentations be available offline so I can catch up on them later?

Thanks.