I haven't ever posted here - but have been quietly reading and learning from everything for many months! I was diagnosed with pv a year ago (jak 2+). I am on hydroxycarbamide each day and bloods are now doing really well. The doctors at the hospital are usually not interested in any other symptoms and said that once bloods are normalised I would feel better - but I don't! I know that overwhelming fatigue and itching are common but should I feel this bad? The hot weather has not agreed with me but the worst itching is on my jaw and neck - red, angry and so sore. Does anyone else get itching in such a peculiar place? I have gained so much from MPN Voice and just want to say thank you to all of you who share and support us newbies!
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