This is my first post here, hello.
I'm 23 and have just been diagnosed with ET after a routine blood test found high platelets. I'm just on asprin now and not to worried about the condition as it stands but I am worried about it progressing.
I've been told it is very rare many times but most figures are between 5 and 10% (Which is not what I would call 'very rare'"). My hematologist says that these figures are for the average patient who is much older than me and therefor has less time for the condition to progress. This would make my odds even worse that 5-10% surely as if I were to make it to normal life expectancy the condition would have to lay around dormant for almost 6 decades.
Does anyone have any figures for young patients or any reassuring words as to why my odds won;t be significantly worse than 1 in 10