ET and varicose veins: Hi Everyone, Does anyone... - MPN Voice

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ET and varicose veins

Kathymoore profile image
8 Replies

Hi Everyone,

Does anyone know if there is any correlation between ET and varicose veins? I was diagnosed with ET in July, started Hydrea at the end of October, taking 500 mg a day. Just had my blood checked again yesterday and my numbers did not go down (690) so they have upped my Hydrea to 1000 mg a day. My question is, is there any connection between ET and varicose veins? I have always had spider veins, but have just developed painful bulging varicose veins. Is it just a coincidence?

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Kathymoore profile image
Kathymoore
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8 Replies
katiewalsh profile image
katiewalsh

Hi, First, my doc said it takes awhile on Hdroxy for results to begin to occur and that was true for me so I'm surprised they upped your dose so soon. Are you being treated by a specialist? I don't know if there's a connection between ET and varicose veins but would also like to know. Mine have gotten much worse and I now have them on my stomach and hips as well as legs). I've been told I I have "venous insufficiency" which has caused redness all over my calves except at my ankles where I think my short athletic socks have provided compression. Have you been wearing compression stockings? They're supposed to help. I don't wear them in the hot weather cuz they make my legs sweat and look very dorky with shorts. But I should do it. Good luck, I hope you find the answer and your platelets reduce. Happy Holidays. Katie

craigdarcy profile image
craigdarcy

Morning. Sorry to here you have joined the club no one wants to be in but now your here it will be of great help. Once you work out the site you can answer most things. My understanding is Yes it is a symptom. I have read this on our site and others . I also have them although they cause no trouble as yet!! Nice to here your otherwise well. 👍

lizzziep profile image
lizzziep

HU takes a bit to work and the dosage may be altered a few times before finding the ideal one for you. I've been on it for ET a couple of years, 1000mg on 5 days 1500 mg on 2 days. My spider veins on my face have definitely increased, and I now have a few on my legs as well, no varicose - yet!

Peterwi profile image
Peterwi

Hi, I have ET and I have the same problem with varicose veins and spider veins as you have. Sometimes I find it hard to go to sleep because of restless legs. Anybody here have a solution ? I'm going to ask my doc. next time I see him.

Have a nice w-e, Winni

jeanr profile image
jeanr

I have varicose veins - and its just been suggested I get support hose - which I just did. I find at night I was having trouble sleeping because of them - not sure if its connected to ET - but I was told my ankle was starting to swell because of one vein -

Mazcd profile image
MazcdPartnerMPNVoice

Hi Kathymoore, I have asked Prof Harrison for you and she has said that it is a coincidence, and that there is no connection between them and ET. Best wishes, Maz

Kathymoore profile image
Kathymoore in reply to Mazcd

Thanks!

lavender007 profile image
lavender007

Hi Kathy,

I have ET diagnosed 2009 ,I take 1,500mg per day I never had varicose veins or related probs, my legs below the knee now have very unsitely broken red veins .My specialist has now said to wear travel socks daily.

This was recently and I will monitor things but for the first time in my life I am embarrassed for anyone to see them.Bought them from local chemist by the way.All I can do is wait ans see.Good luck

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