All I am Male 28...
Haemoglobin levels at 17 ,
Haemocrit at 52,
Serum erythropoiten levels are low at 3.5 ,
RBC is 5.5
JAK 12 -15 and jak v617f are all NEGATIVE.
Spleen size 10.5
no symptoms except itching which happens very occasionally.
In the last two years I have done blood letting two times only. The bone marrow does not show anything pertaining to profileration and shows normal haematopoesis. The ferritin levels are low but still in the normal range.
I have been smoking for last 8 years, but have quit smoking for last two months. The levels still does not seem to have reduced. My oxygen saturation level is however at 99 , but doctor says it will take 15 , 20 years for a person with secondary polycythemia to show lower oxygen levels.
I met Doctors in Germany and India and no one could confirm if it is primary or secondary polycythemia.
I am about to get married and not sure if this has to be really informed to my fiancee as it is still not confirmed that I have a primary polycythemia.
The current haemocrit level is 49.1 and the doctor has asked me take ecosprin everyday.
HAS ANYONE COME ACROSS SUCH SITUATION , would be really helpful if someone can throw some additional light on the same.